Title From the edge of the spectrum to the heart of the sun
Subtitle Developing a transferable family-based care package for a high dependency adult with autism and learning difficulties.
Introduction J. is an autistic adult with additional learning difficulties and epilepsy who is dependent on carers to stay safe and meet his needs. He has been living at the family home in West Yorkshire since March 2020, where he is cared for primarily by his father, Y., the author of this thesis and a trained autism educator who describes himself as ďon the edge of the autistic spectrumĒ.

To support and develop the delivery of high quality care at home and to facilitate the delivery of high quality care in future residential care settings, an assessment of Jís needs will be undertaken by Y., which will then inform a comprehensive set of written care plans and accompanying video care plans aimed at supporting the delivery of high-quality care at the family home as well as being accessible to managers and staff in residential settings to aid high-quality future assessment and care.

Although the project will prioritize Jís needs, a journal will provide a platform for reflecting upon issues pertinent to his present and future care, including the role of family carers, particularly those who believe they have genetic commonalities with the autistic people they are caring for; it will also consider social policy in England; neurodiversity and autism rights; and critiques of autism care within critical autism studies.
Scope Critical reflection will focus on the development, implementation and evaluation of Jís care package, but analyses of the impact of family and professional agencies on the care process will be undertaken where appropriate.
Aims & Objectives To assess Jís needs, write a set of care plans which describe how Jís needs should be met along with a set of accompanying video care plans, and evaluate the care plans. The projectís progress will be supported by a reflexive autoethnographic diary, which will become the basis for an extended autoethnographic narrative.
Justification The needs of J..
Experience of residential care in England.
Review of the Literature The project encompasses fields of knowledge that include autism studies; ďlonersĒ; neurodiversity; critical autism studies; caring for adults with autism; social care in England; care assessment; care planning; care plan evaluation; the production of video care plans; and family-based autoethnography.
Methodology Autoethnography
Work schedule The project should be completed within 3 years.
September 2021-August 2024.
Times given for the work schedule below are approximate.
01. Methodology (3 months)
02. Revisiting autism studies (6 months)
03. Social policy & autism care (3 months)
04. Care Plans (12 months)
        (a) General introduction
        (b) Assessment
        (c) Writing care plans
        (d) Video care plans
        (e) Evaluating care plans
05. The autoethnographic narrative (12 months)
Resources Research texts
Autoethnographic journal
Video camera, laptop, and video editing software.
References & indicative bibliography Adams, T. E. and Manning, J., 2015. Autoethnography and family research. Journal of Family Theory & Review, 7(4), pp.350-366.
Bochner, A. and Ellis, C., 2016. Evocative autoethnography: Writing lives and telling stories. Routledge.
Davidson, J. and Orsini, M. eds., 2013. Worlds of autism: Across the spectrum of neurological difference. U of Minnesota Press.
Fletcher-Watson, S. & Happť, F., 2019. Autism: A new introduction to psychological theory and current debate. Routledge.
Glasby, J., 2017. Understanding health and social care: third revised edition. Policy Press.
Lloyd, M., 2010. A Practical Guide to Care Planning in Health and Social Care. Open University Press.
Osgood, T., 2019. Supporting Positive Behaviour in Intellectual Disabilities and Autism: Practical Strategies for Addressing Challenging Behaviour. Jessica Kingsley Publishers.
Silberman, S., 2015. Neurotribes: The legacy of autism and the future of neurodiversity. Penguin.
Stoller, B. M. (2019) Filmmaking For Dummies, 3rd Edition (For Dummies)
Wolff, S., 2020. Loners: The life path of unusual children. Routledge.

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